Support Groups
You don’t have to carry CRPS alone. These organizations connect patients, caregivers, and families with people who understand exactly what you’re going through.
Whether you’re looking for a local in-person meeting, a virtual group you can join from bed on a bad pain day, or simply someone to talk to who gets it these three organizations run some of the most active CRPS and chronic pain communities available today.
RSDSA
United States · International
The Reflex Sympathetic Dystrophy Syndrome Association maintains one of the largest support group directories in the CRPS community a state-by-state listing of in-person, phone, and virtual groups across the U.S., plus international contacts in Canada, Australia, New Zealand, and the UK.
- State-by-state group directory (in-person & virtual)
- Specialized groups - young adults, veterans, caregivers
- Nationwide phone & email support
- Grant program to help start a new group
Pain Connection
United States
A program of the U.S. Pain Foundation, Pain Connection offers peer support built specifically around chronic pain including state-based meetings, national daily virtual groups for when nothing local is available, and specialized groups for specific populations.
- State-based support groups
- National & daily virtual groups
- Specialized & affinity groups
- Peer support-group leader training
Burning Nights CRPS Charity
United Kingdom
A UK-based charity dedicated entirely to CRPS, Burning Nights runs monthly online support groups alongside a full suite of confidential support services for patients, carers, partners, and young people alike.
- Monthly online support groups
- Support helpline & live chat
- Virtual befriending & counselling services
- Online community forum
Help others find their people.
If you're part of a CRPS support group that should be listed here, let us know so we can help more patients find it.